Carly Findlay

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Ichthyosis Awareness Month – Rebekah’s story: “I’ve experienced people who think I’m stupid because of my skin.”

May 5, 2015 Carly Findlay Leave a Comment

Rebekah is coming across the ditch from New Zealand for the Australian Ichthyosis Meet this Saturday. I am really excited that she’s making the trip, and that I can meet someone around my age with the condition. I’ve known her online for around three years – and see she leads a very active life. She has Lamellar Ichthyosis. 

Meet Rebekah. 

“I’ve had Lamellar Ichthyosis since my birthday. I am 32 almost 33!! And I live in Christchurch, New Zealand.

Growing up was scary and isolated, though there were plenty of good times and experiences as well.
I work full time and study classical piano performance at diploma level as well as normal social events as well
I work in a call centre and I like doing anything that involves music art or culture – I am a classically trained pianist – I enjoy sports as well although sometimes health issues prevent me from participating.
Being busy keeps me out of mischief.Through living a full life – it gives me self confidence and worth, like contributing to society in a positive way. 
Barriers for me have been people not understanding that having different skin doesn’t mean anything is affected. I’ve experienced people who think I’m stupid because of my skin.
My message for young people with ichthyosis is: live life to the fullest and give everything a go and focus on the positives. I’m a “glass half full” kind of girl. Surround yourself with positive people who support and love you for you.
YES I am excited about the meet up for  many reasons but mainly I will get to meet someone who “actually understands ” what its like and can empathise on every level.”

May is Ichthyosis Awareness Month – I am sharing stories of people who have experienced Ichthyosis. Read all stories in the Ichthyosis Awareness Month Blog Project here.


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Related

ichthyosis, ichthyosis awareness, ichthyosis awareness month 2015, Uncategorized

Comments

  1. Rachel Cox says

    May 5, 2015 at 10:45 pm

    Your beauty and positivity shines out from you, Rebekah! So glad you will get to meet Carly and the others in person. There is something so great about getting together with your tribe! Have a great trip!

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  2. Anonymous says

    May 6, 2015 at 6:32 am

    Carly and Rachel Cox, Rebekah is an awesome person, and I'm proud to have her as a mate of mine.
    Liz Koppert

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  3. Sandra Kelly says

    May 7, 2015 at 11:43 am

    I love your message for young people living with this condition. Just beautiful. Enjoy the meet. 🙂 x

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The material on Tune into Radio Carly is copyright. The writing in this blog is by Carly Findlay unless otherwise stated. Most photos in this blog are by Carly Findlay unless otherwise stated. Please do not reproduce without permission from Carly Findlay. This blog represents my personal opinions and experiences. It does not reflect those of my employers'. The information I provide about ichthyosis is mostly based on personal experiences. Please seek medical advice or counseling before trying any new treatments I've written about. Where stared, I use affiliate links on this blog. By clicking them, I receive a small percentage of the purchase.

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