“I am forty years old, one of three daughters and the only one with lamellar Icthyosis. I have been married for 16 years now, with three children of my own, none of them have Icthyosis. I also have one grandchild who does not have it either.
People would ask if I was in a fire. I remember once a lady asking me when I was about 10, checking out at the store, if I had been in a fire, and I looked at my dad behind me and said yes, and that the rest of my family died. I really do not understand why people feel they have the right to ask such questions to people, especially to a child.
May is Ichthyosis Awareness Month – I am sharing stories of people who have experienced Ichthyosis. Read all stories in the Ichthyosis Awareness Month Blog Project here.