I have to be innovative to manage Ichthyosis.
And at work, my manager and I created a stool for me to elevate my legs under my desk. Two small bins stacked together, padded with some old legislation books to make them taller! Such a relief to put my feet up!
I asked friends how they are innovative with managing their conditions.
I’m studying (via block courses) at the moment and sitting upright in a normal chair for a couple of consecutive days is impossible for me. So I take along my beanbag, which means I can recline and use my chair for a footstool! It works a treat and I cope so much better with this small accomodation. People have been so lovely about it, too.
Kerry told me:
“I’m allergic to light and heat so I freeze wet towels to wrap myself in to relieve the pain and intense itch. so cold, but so nice!”
“I wear Skechers Go Walk 2 shoes, the extra thick flexible sole cushions my feet. That way I can walk a lot more but I really wish they were more attractive, like my shoes used to be. Then again, I should be grateful I can still walk, lol.”
My old next-door neighbour Naomi said:
“Ohhh… my last workplace bought me an ottoman to put my feet up on. It was one of the nicest things that a boss ever did for me. These days I switch tasks to keep productive through as much of the day as possible. I work from home so I can work lying down if I need to and nap in my lunch breaks. I cook meals on the weekend and freeze them so I don’t have to order out if I’m having a bad day. I’m slowly learning to just freaking rest if I’m overtired.”
Maria, who has Ichthyosis loves support socks:
“Support socks are my help for my sore and weeping legs.”
Alfie’s mum Cat told me
“It’s amazing what we find to help us when we need to! I used to be able to take a nap at work on my lunch break when I needed to, I had a quiet room I could go to and not disability related but I used a tampon to stop a nose bleed…didn’t look attractive but stopped my nose bleed!!”
Jess joked that she uses her two tall, strong bodies for jobs!:
“I have learned to open jars by smashing the top of it on the bench and popping it off. I can’t hold my arms up long enough to hang washing on the clothes line, so I use clothes horses instead. I hang all my wet washing on coat hangers and almost never have to iron.”
What ‘life-hacks’ do you use to manage your illness or disability?