Hey disability allies! I am so impressed and heartened to see so many allies stepping up this Disability Day. It’s a huge change from previous years. But I’m still going to ask - hey disability  allies - where are you at? Are you making your events accessible - holding them … [Read more...]

Dear disabled friend, Happy Disability Day! Disability is broad. It encompasses physical disability, diverse mental health, sensory impairments like Deafness and blindness, cognitive disability, neurodivergency, chronic illness, and dynamic disability - that is, conditions that … [Read more...]

It’s community question time! ”How do allies respond to the stares, questions, comments and discrimination disabled people receive?” This is a question I get a lot - especially from new friends, as well as new parents of kids of Ichthyosis. It can be quite confronting and … [Read more...]

It’s Halloween tomorrow. Please don’t dress up as people with face differences and skin conditions, or as disabled people, for Halloween. It’s extremely harmful. You might think it’s just a fun form of creative expression, but when people like me are constantly being … [Read more...]

I’ve been thinking a lot about how I’ve been made to feel like I must put non disabled people’s comfort before my own when requesting access from them, and when I’ve spoken up about their ableism (intended or not). I’m going to stop doing that. I’m going to ask and speak up, … [Read more...]