May is Ichthyosis Awareness Month. Here I am, for your awareness. I have Ichthyosis - the type I have is Netherton’s Syndrome. There are around 25 types of Ichthyosis, ranging in severity, appearance and treatments. Mine is one of the obvious, severe types (itchy, painful and … [Read more...]

Image: two people standing against a wall, smiling, hugging, looking at each other. On the left is Carly, and on the right is Eliza. The most magical thing happened this afternoon. I saw the beautiful Eliza Hull play at National Gallery of Victoria. So very talented. Eliza … [Read more...]

  New cover release! By popular demand, I’ve worked with Black Inc to develop some alternative covers for Growing Up Disabled in Australia. These covers are aimed at the (mostly non disabled) people who just can’t bear to … [Read more...]

CW: ableism, trauma, spoilers   I have a lot of thoughts about Before I Saw You - the 34th book I’ve read so far this year. Before I Saw You popped up on my Kindle recommendations - and honestly, I should have heeded the alarm bells of the snippets of previous reviews. “A … [Read more...]

Wow! My dear friend and colleague Eliza Hull wrote a song about me for The Canales Project. It is perfect. I am honoured, and a bit lost for words. Thank you Eliza. Click here to buy the Hear Her Songs album.💜Images: a collage of four photos. from top left: ID 1- Black background … [Read more...]