On Monday I wrote how blogging builds and strengthens communities. My blog brings people together. I've come into contact with many people with, or parents of children with Ichthyosis through writing here. Last year while overseas I met Jack and his parents, and also DeDe. I also … [Read more...]
One like = one prayer. How exploitative memes and online slacktivism is hurting real people.
(source) Please don't think that Facebook will donate money or prayers to sick or disabled children. I've seen a number of very distressing photos appear in my feed, with the caption "for every like, Facebook will donate money to save this baby/child". Similarly those photos … [Read more...]
Tiny Superheroes – Empowering extraordinary kids one cape at a time.
It's easy to feel powerless when you have a chronic illness or disability. Much time is spent having medical treatments and appointments, various therapies and trying to overcome society's curiosity and sometimes cruelty. It's easy to forget that every day, you've got strength in … [Read more...]
Whole of body health.
I have a few confessions to make:I spend so much time focusing on the health of my skin that I don't seem to focus on my whole of body health. I spend a lot of time seeing dermatologists, eye and ear specialists and the infectious disease unit to ensure my skin condition is under … [Read more...]
Illness one-upmanship. It’s not cool.
"Compassion does not happen when you compare".This post may offend some people. But what's a writer's purpose when they don't move their readers in some way? I saw the above quote and picture on Nathalie from Easy Peasy Kids' Facebook page. It is an idea I've been thinking about … [Read more...]
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