Over the weekend my Dad spent time scanning old photos and uploading them to facebook. He was probably bored without Mum (she was down in Melbourne with me) and they've also just got the NBN, so hello fast internet! He uploaded this one - I'd never seen it before. I love my time … [Read more...]
When Mum comes to town (we eat a lot of great food).
Last weekend Mum came to stay. We got a fair bit of stuff done around my house, but most of the time was spent eating. And teaching Mum how to use social media (Twitter, Instagram and the art of the selfie). It's so good having a foodie Mum - we spend a lot of time … [Read more...]
Not well. Fandom.
I'm not well. Everything has collided and now I have sorer-than-usual skin. The pain is hard to describe - it's throbbing and tiring, and wears at my emotional armour. I'll be ok soon - I always am. This month has definitely shown that stressful situations (and even excitement) … [Read more...]
Ichthyosis Awareness Month: My Dad’s story ~ “It was never easy being the father of a girl with special needs.”
I have been moved by every submission for the Ichthyosis Awareness Month project, but my Dad's moved me most - moved me to tears in fact. My Dad has written of the difficulties he had with parenting me. It saddened me to read that I had a hard time affectionately bonding with … [Read more...]
Ichthyosis Awareness Month: My Mum’s story.
My Mum is the best. She's been my carer, my guide and my best friend. And I am continually thankful to her and Dad for for giving me such a wonderful life and never stopping me from doing anything. I can't imagine what it would have been like for her to have her life changed so … [Read more...]