Carly Findlay

Writer, speaker, appearance activist. Loving life!

  • About me
  • Say Hello – my book
  • Hire me!
  • Support Me
  • Contact
  • What is Ichthyosis?
  • Ichthyosis + appearance diversity resources
  • Disclaimer
  • Shop
  • Guest post contribution guidelines
  • Growing Up Disabled in Australia

9 Instagram stars who have Ichthyosis. (And please consider buying me a drink!)

May 30, 2016 Carly Findlay Leave a Comment

A while back I wrote about the ways you can use instagram to connect with the chronic illness community. And my mate Starbrite Warrior wrote about this too. It's so ace to connect with others who know what you go through, isn't it? And Instagram is a good platform to use when … [Read more...]

IAM1026, ichthyosis, ichthyosis awareness, Ichthyosis Awareness Month, Uncategorized

Ecdysis. Tender soles.

May 29, 2016 Carly Findlay Leave a Comment

I was reading about how angry snakes get when they shed their skin. One animal carer said he observed a skin-shedding snake to lose most of its vision and wouldn't let anyone near him.The process is called Ecdysis. Ecdysis is a necessary process for growth and movement, and … [Read more...]

IAM1026, ichthyosis, ichthyosis awareness, Ichthyosis Awareness Month, Uncategorized

Ichthyosis Awareness Month: Vereniging voor Ichthyosis Netwerken – the Dutch Association for Ichthyosis Networks.

May 26, 2016 Carly Findlay Leave a Comment

My friend Karin from Holland writes for Ichthyosis Awareness Month today. Karin runs Vereniging voor Ichthyosis Netwerken - the Dutch Association for Ichthyosis Networks. She's doing an amazing job to bring together people with Netherton's Syndrome (the type of Ichthyosis I have) … [Read more...]

IAM1026, ichthyosis, ichthyosis awareness, Ichthyosis Awareness Month, Uncategorized

How to cope with the emotional aspects of Ichthyosis – suggested by people living with the condition.

May 25, 2016 Carly Findlay Leave a Comment

One thing I can’t seem to find is a resource offering advice on how to cope emotionally while living with Ichthyosis. There is a lot of fundraising money for research and a big focus on raising awareness, which is GREAT, but it's hard to find any tangible ideas for children, … [Read more...]

activism, advocacy, IAM1026, ichthyosis, ichthyosis awareness, Ichthyosis Awareness Month, Uncategorized

Choosing clothes to accommodate ichthyosis.

May 22, 2016 Carly Findlay Leave a Comment

I often get asked why I cover up so much. Am I hiding my skin condition? Am I cold when it’s really hot? Am I sure I’m not hot?!I don’t go out of my way to hide my Ichthyosis. I am very proud of who I am. However, I do cover up to be comfortable. Wearing layers helps to protect … [Read more...]

fashion, IAM1026, ichthyosis, ichthyosis awareness, Ichthyosis Awareness Month, Uncategorized

  • 1
  • 2
  • 3
  • …
  • 11
  • Next Page »

Socials

  • View tune.into.radio.carly’s profile on Facebook
  • View @carlyfindlay’s profile on Twitter
  • View carlyfindlay’s profile on Instagram
  • View sqoggle’s profile on YouTube

Book me to speak

Sign up for some love in your inbox

Listen to my podcast

Tune in

Enter your email address to receive new posts by email.

Archives

Popular Posts

  • What's with the image descriptions on my social media posts?
  • Response to Diving Into Glass by Caro Llewellyn
  • The death of Offspring's Dr Patrick Reid. The TV death that stopped a nation.
  • Creamoata: a much loved, yet lost food of my childhood. Help me find it.
  • The Greatest Showman - upliftspirational exploitation and the able gaze
  • Disability is not a bad thing! - My keynote speech for International Day of People with Disability in Albury Wodonga
  • A little bit of magic
  • Callan Mulvey got married
  • Interview with Beth Bradfield from Malory Towers
  • My concerns about Wonder the film (and how to talk to your kids about Wonder)

Copyright

The material on Tune into Radio Carly is copyright. The writing in this blog is by Carly Findlay unless otherwise stated. Most photos in this blog are by Carly Findlay unless otherwise stated. Please do not reproduce without permission from Carly Findlay. This blog represents my personal opinions and experiences. It does not reflect those of my employers'. The information I provide about ichthyosis is mostly based on personal experiences. Please seek medical advice or counseling before trying any new treatments I've written about. Where stared, I use affiliate links on this blog. By clicking them, I receive a small percentage of the purchase.

Copyright © 2021 · Daily Dish Pro Theme on Genesis Framework · WordPress · Log in