Carly Findlay

Writer, speaker, appearance activist. Loving life!

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Ichthyosis Awareness Month: Jack’s story ~ a cheeky smile and can-do attitude.

May 3, 2013 Carly Findlay 10 Comments

I met little Jack Oldacres and his parents in London last year. It was one of my favourites days abroad. You can read about our meeting here. I love seeing photos of his progress on Facebook - he's at nursery school now and plays football on the weekends. Jack's Dad, Danny, … [Read more...]

ichthyosis, Ichthyosis Awareness Month, skin, Uncategorized

Ichthyosis Awareness Month: FIRST ~ the official support foundation.

May 2, 2013 Carly Findlay Leave a Comment

Moureen Wenik is the program and research director at the Foundation for Ichthyosis and Related Skin Types - also known as FIRST. I asked her to tell me about the Foundation, her role and how it can help patients and families affected by Ichthyosis. FIRST is based in America, but … [Read more...]

ichthyosis, Ichthyosis Awareness Month, skin, Uncategorized

Ichthyosis Awareness Month: Mui’s story ~ “I like that the fact I stand out goes right out the window and the real world comes in.”

May 1, 2013 Carly Findlay 30 Comments

When I first started talking with Mui online, I flicked through her photo albums and was taken aback by how similar we look. (The doctors have told me that the genetic make up of people with Ichthyosis means there's a likelihood of similar face shape and bone structure.) I … [Read more...]

ichthyosis, Ichthyosis Awareness Month, Uncategorized

Ichthyosis Awareness Month: Amplifying voices and faces through blogging.

April 30, 2013 Carly Findlay 10 Comments

I am so excited to introduce you to the Ichthyosis Awareness Month blog project! This project will run throughout May. "Ichthyosis is a rare genetic or acquired skin condition affecting an estimated 10-20 individuals per Million. Ichthyosis is characterised by persistently dry, … [Read more...]

bloggers, blogging, ichthyosis, Ichthyosis Awareness Month, skin, Uncategorized

The Ichthyosis Awareness Month blog project – launching 1 May 2013

April 30, 2013 Carly Findlay Leave a Comment

I've been working on a very big project that I'm so proud of. All will be revealed here tomorrow and run throughout May.    … [Read more...]

blogging, Ichthyosis Awareness Month, skin, Uncategorized

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Archives

Popular Posts

  • What's with the image descriptions on my social media posts?
  • Interview with Beth Bradfield from Malory Towers
  • The death of Offspring's Dr Patrick Reid. The TV death that stopped a nation.
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  • My review of Wonder the film
  • Ichthyosis Awareness Month - The Girl Behind the Face: "Life’s rarely been split between either laughter or tears; both have existed simultaneously."
  • Talking microaggressions with Jon Faine on ABC Radio
  • Disability is not a bad thing! - My keynote speech for International Day of People with Disability in Albury Wodonga
  • What kind of person laughs at a stranger's face?

Copyright

The material on Tune into Radio Carly is copyright. The writing in this blog is by Carly Findlay unless otherwise stated. Most photos in this blog are by Carly Findlay unless otherwise stated. Please do not reproduce without permission from Carly Findlay. This blog represents my personal opinions and experiences. It does not reflect those of my employers'. The information I provide about ichthyosis is mostly based on personal experiences. Please seek medical advice or counseling before trying any new treatments I've written about. Where stared, I use affiliate links on this blog. By clicking them, I receive a small percentage of the purchase.

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