Carly Findlay

Writer, speaker, appearance activist. Loving life!

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Ichthyosis in developing countries: the stigma experienced in Africa.

September 18, 2016 Carly Findlay Leave a Comment

 In July I was alerted to some children in Wajir, Kenya who are suffering terribly from Ichthyosis. I rarely use the term 'suffering' but these children really are. My heart breaks for them.The children haven't received adequate medical treatment and are hidden from their … [Read more...]

appearance activism, appearance diversity, ichthyosis, ichthyosis awareness, Uncategorized

Australian Centre for Leadership for Women Diversity Awards

September 15, 2016 Carly Findlay 2 Comments

On Wednesday night I had the pleasure of attending the Australian Centre for Leadership for Women Diversity Awards in Sydney. From the website:"ACLW’s Awards Program commenced in 2006, culminating so far in three national awards for women’s advancement, with more than 60 … [Read more...]

appearance activism, appearance diversity, awards, ichthyosis, ichthyosis awareness, ichthyosis meet, Uncategorized

Ichthyosis in developing countries – India

September 11, 2016 Carly Findlay 6 Comments

  Last week, an article was published about two young siblings in India living with Lamellar Ichthyosis. The article describes the children as having snake skin.Sayali (13) and Siddhant (11) Kapase live in Pune, India. The children, along with the parents, Sarika and Santosh … [Read more...]

appearance activism, appearance diversity, disability, ichthyosis, ichthyosis awareness, Uncategorized

Language really does matter when reporting about people living with Ichthyosis. Harper’s real story.

August 18, 2016 Carly Findlay 28 Comments

 This article from Stock News USA came up in my google alerts yesterday morning. You can read the full text here.  "Suffering from horrible harlequin Ichthyosis.""When she was born, she looked like an alien. It was very traumatic""Her bizarre condition."Those three excerpts is … [Read more...]

appearance activism, appearance diversity, disability, disability media, ichthyosis, ichthyosis awareness, media, Uncategorized

9 Instagram stars who have Ichthyosis. (And please consider buying me a drink!)

May 30, 2016 Carly Findlay Leave a Comment

A while back I wrote about the ways you can use instagram to connect with the chronic illness community. And my mate Starbrite Warrior wrote about this too. It's so ace to connect with others who know what you go through, isn't it? And Instagram is a good platform to use when … [Read more...]

IAM1026, ichthyosis, ichthyosis awareness, Ichthyosis Awareness Month, Uncategorized

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Copyright

The material on Tune into Radio Carly is copyright. The writing in this blog is by Carly Findlay unless otherwise stated. Most photos in this blog are by Carly Findlay unless otherwise stated. Please do not reproduce without permission from Carly Findlay. This blog represents my personal opinions and experiences. It does not reflect those of my employers'. The information I provide about ichthyosis is mostly based on personal experiences. Please seek medical advice or counseling before trying any new treatments I've written about. Where stared, I use affiliate links on this blog. By clicking them, I receive a small percentage of the purchase.

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