The cleaner was due today. Last time they came, they were scared of my face and left. There is usually a different cleaner each time. I know this now I work from home, and also because of the varying quality of the cleaning. Part of me wanted to stay home, so … [Read more...]
My face scared my cleaner away today
This is my face up close. It's red, shiny and a bit lopsided because of a dodgy lymph node that flares up because of my inflammation. It's usually very smiley. Sometimes my hair is out of control, and sometimes there's a few bits of wayward skin hanging off my face and hair. This … [Read more...]
This is how two different types of Ichthyosis look, feel and are treated.
I got to hang out with Kyri just before I went overseas. We were in Sydney for an award ceremony . It was so much fun, and we realised how much we have in common. We could not stop talking. Kyri and I both have Ichthyosis - but different types. It seemed that our commonalities … [Read more...]
Seven books to help kids with Ichthyosis (and help kids learn about Ichthyosis).
Last week, a mum in one of the Ichthyosis groups I belong to asked about books to teach kids about Ichthyosis (and visible difference). The thread was soon filled with suggestions - and I asked if I could collate them and others I've found useful into one blog post. They … [Read more...]
Ichthyosis and medical shaming.
I've seen body shaming, food shaming and now medical shaming - where people are made to feel guilty or fearful for their medical treatment choices. It is also where people are recommended non prescribed treatments from the unqualified. It fits into the category of unsolicited … [Read more...]
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