Carly Findlay

Writer, speaker, appearance activist. Loving life!

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Meeting Jack – a little boy with the same form of Ichthyosis as me, being a positivity cyclist.

July 15, 2012 Carly Findlay 14 Comments

Today was a very important day of my trip, and perhaps of my life. I met little Jack Oldacres and his parents Julie and Danny. We have been chatting on Facebook since Jack was a baby, and today they made their way to London to meet me. It was such a lovely day - I truly think we … [Read more...]

ichthyosis, jack oldacres, london, netherton's syndrome, Uncategorized

Guest blogging over on the Netherton’s Syndrome site

July 25, 2010 Carly Findlay 5 Comments

So my friend in the UK, Matt Jeffries has started a website for little Jack Oldacres who was born with Netherton's Syndrome. You may recall I wrote about him a few months back.The website is to raise money and to educate people about Netherton's Syndrome.Matt asked me to do a … [Read more...]

carly findlay, ichthyosis, jack oldacres, netherton's syndrome, Uncategorized

Jack Oldacres – Netherton’s Syndrome

June 14, 2010 Carly Findlay 10 Comments

I read this article this morning. It's about a little boy with Netherton's Syndrome (the same variant of ichthyosis I have). Jack Oldacres is 21 months old and lives in the UK. His parents, Daniel and Julie, are on a mission to educate people about Netherton's Syndrome, to get … [Read more...]

carly findlay, ichthyosis, jack oldacres, netherton's syndrome, Uncategorized

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Copyright

The material on Tune into Radio Carly is copyright. The writing in this blog is by Carly Findlay unless otherwise stated. Most photos in this blog are by Carly Findlay unless otherwise stated. Please do not reproduce without permission from Carly Findlay. This blog represents my personal opinions and experiences. It does not reflect those of my employers'. The information I provide about ichthyosis is mostly based on personal experiences. Please seek medical advice or counseling before trying any new treatments I've written about. Where stared, I use affiliate links on this blog. By clicking them, I receive a small percentage of the purchase.

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