Today was a very important day of my trip, and perhaps of my life. I met little Jack Oldacres and his parents Julie and Danny. We have been chatting on Facebook since Jack was a baby, and today they made their way to London to meet me. It was such a lovely day - I truly think we … [Read more...]
Guest blogging over on the Netherton’s Syndrome site
So my friend in the UK, Matt Jeffries has started a website for little Jack Oldacres who was born with Netherton's Syndrome. You may recall I wrote about him a few months back.The website is to raise money and to educate people about Netherton's Syndrome.Matt asked me to do a … [Read more...]
Jack Oldacres – Netherton’s Syndrome
I read this article this morning. It's about a little boy with Netherton's Syndrome (the same variant of ichthyosis I have). Jack Oldacres is 21 months old and lives in the UK. His parents, Daniel and Julie, are on a mission to educate people about Netherton's Syndrome, to get … [Read more...]