Spoilers ahead! I have been following Shane Burcaw on Instagram for a few years and was excited to see he has a new book out - Strangers Assume My Girlfriend is my Nurse. I flew through the book on the plane (excuse the pun!) - it was so easily readable, and relateable. I am … [Read more...]

Spoilers ahead! I was sent a book called Sensitive by Allayne Webster - published by UQP. It’s a book I wish Little Carly had. I devoured it in a day.  SJ wants to reinvent herself in a new town, changing her name. But she can’t change her skin. Sensitive is a … [Read more...]

It’s with immense sadness that I write about my best friend, Camille’s death. Camille - known as CurlyPops - had an incredibly full life, which we celebrated today. Today would also have been her 45th birthday. I know she wasn’t one for resting, so I bet her … [Read more...]

I am tired of the fight. I’m tired of being regarded as an oncall helpline, expected to educate people all the time. I’m tired of feeling alone. I’m tired of being seen as difficult because I speak out about the abuse that happens to people with Ichthyosis. I’m … [Read more...]

While I’ve been in the media talking about Say Hello, lots of people have called me “an inspiration”, “inspiring” or “inspirational”. I know you mean it as a compliment, but it’s a tricky thing for me and other disabled people to be seen as inspiring. It can be really hard to … [Read more...]