Things have been quiet on this blog. I know. I thought that through working a part time day job and freelancing, I'd have more time. But instead I've been joyously busier than ever. It's been quite wonderful. I wasn't expecting to achieve the many things that I have these past … [Read more...]
A death in the Ichthyosis community. When we lose one of our own.
I woke up to some devastating news last Saturday. My friend Stephanie died unexpectedly and suddenly. She was 23. You might recognise Stephanie from my blog. Stephanie is a wife and mother to two toddlers. She made history, being the first woman with Harlequin Ichthyosis to … [Read more...]
You are not a good disability ally if you’re ableist.
This post contains some ableist language that might be triggering Yesterday I engaged with two people who excused their ableism by saying they work with children and adults with disability. No.That's like saying you know a black person so you can be racist.Knowing a disabled … [Read more...]
My wedding story in New Idea magazine! Why I’m changing the narrative of disability in the mainstream media.
Because I'm about changing the narrative of disability and appearance diversity in mainstream media, and also a freelance writer and need to pay the bills, I wrote Adam and my wedding story for New Idea I wrote it in third person, and now New Idea claims me as … [Read more...]
Support group for Australian and New Zealand women living with Ichthyosis.
I have set up a private Facebook support group for Australian and New Zealamd women (and people who identify as women) who have Ichthyosis. If you fall into this category, you are welcome to join. Women can discuss sensitive topics they might not feel comfortable … [Read more...]
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