It’s community question time! ”How do allies respond to the stares, questions, comments and discrimination disabled people receive?” This is a question I get a lot - especially from new friends, as well as new parents of kids of Ichthyosis. It can be quite confronting and … [Read more...]

It’s Halloween tomorrow. Please don’t dress up as people with face differences and skin conditions, or as disabled people, for Halloween. It’s extremely harmful. You might think it’s just a fun form of creative expression, but when people like me are constantly being … [Read more...]

I’ve been thinking a lot about how I’ve been made to feel like I must put non disabled people’s comfort before my own when requesting access from them, and when I’ve spoken up about their ableism (intended or not). I’m going to stop doing that. I’m going to ask and speak up, … [Read more...]

Absolutely exhausted and disgusted at the AllySHIT I’ve seen - and been on the receiving end of - today. My photo - along with many others peoples’ - was misused (without my consent) in an inspiration porn video about facial difference. Some of the text above the video … [Read more...]