Carly Findlay

Writer, speaker, appearance activist. Loving life!

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Guest blogging over on the Netherton’s Syndrome site

July 25, 2010 Carly Findlay 5 Comments

So my friend in the UK, Matt Jeffries has started a website for little Jack Oldacres who was born with Netherton’s Syndrome. You may recall I wrote about him a few months back.

The website is to raise money and to educate people about Netherton’s Syndrome.

Matt asked me to do a guest blog for the site, and here it is.

My aim of this guest blog was to provide some hope for the kids born with Netherton’s Syndrome and ichthyosis, and of course their families. I want people to know that things are going to be hard at any point in a life with this skin condition, but things are not futile. There are so many opportunities for the taking, and you really just need to enjoy life.

You can read my guest blog here.

Thanks for asking me to write for the Netherton’s Syndrome page, Matt and the Oldacres family.

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Related

carly findlay, ichthyosis, jack oldacres, netherton's syndrome, Uncategorized

Comments

  1. Katie says

    July 25, 2010 at 9:08 pm

    I think you set just the right tone with your piece – you gave a bit of hope whilst still being realistic. It's a great site and I hope it manages to meet its aim of raising awareness of Netherton's Syndrome.

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  2. Lanelle Elizabeth says

    July 26, 2010 at 9:07 pm

    You're super chic in that photo. You take the sunshine in life and dowse the rain. I like your outlook on everything. Thank you for providing hope for those who need it most 🙂 x

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  3. Faux Fuchsia says

    July 27, 2010 at 8:11 am

    well done. I would like to come to Melb for yr opening-when is it? it depends on my work though, and I do have some travel plans. Let me know x

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  4. She Wore It Well says

    July 28, 2010 at 9:07 am

    You are an inspiration!!! x

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  5. Ruby's Raiser says

    July 29, 2010 at 1:23 am

    A very inspirational post, both for those who have Netherton's Syndrome and those who are learning more about it. Right on, Carly!

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The material on Tune into Radio Carly is copyright. The writing in this blog is by Carly Findlay unless otherwise stated. Most photos in this blog are by Carly Findlay unless otherwise stated. Please do not reproduce without permission from Carly Findlay. This blog represents my personal opinions and experiences. It does not reflect those of my employers'. The information I provide about ichthyosis is mostly based on personal experiences. Please seek medical advice or counseling before trying any new treatments I've written about. Where stared, I use affiliate links on this blog. By clicking them, I receive a small percentage of the purchase.

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