So my friend in the UK, Matt Jeffries has started a website for little Jack Oldacres who was born with Netherton’s Syndrome. You may recall I wrote about him a few months back.
The website is to raise money and to educate people about Netherton’s Syndrome.
Matt asked me to do a guest blog for the site, and here it is.
My aim of this guest blog was to provide some hope for the kids born with Netherton’s Syndrome and ichthyosis, and of course their families. I want people to know that things are going to be hard at any point in a life with this skin condition, but things are not futile. There are so many opportunities for the taking, and you really just need to enjoy life.
Thanks for asking me to write for the Netherton’s Syndrome page, Matt and the Oldacres family.