Ichthyosis Awareness Month: first known case of woman with Harlequin Ichthyosis to give birth! Congratulations Stephanie!

Tonight’s story is a good news one, and a very fitting event to happen during Ichthyosis Awareness Month. What a milestone in the Ichthyosis community! Her story is too good not to share.

 

Stephanie Turner (from Arkansas, America), who has Harlequin Ichthyosis, gave birth to a baby boy on 25 May 2013. Stephanie, aged 20, was unsure whether she was able to carry a child, but her pregnancy (although high risk) was smooth and her baby was born without Ichthyosis.

She and her husband Curt have named their baby William Mason Drake Turner, and he will affectionately be known as Little Will. William weighed 3.4 kilos (7 pound 10 ounces for you non-metric folk).

Stephanie is the first known case of a woman affected with Harlequin Ichthyosis to give birth. It has been exciting to see her progress online. I’ve seen some photos of her baby on Facebook and he’s beautiful.

Stephanie blogs here and she was also recently featured on a national news story in America. I love how she articulates her story, and I love the love she has for her husband.

You can send your wishes to Stephanie, Curt and Little Will well on Twitter and Facebook.

Stephanie has the most beautiful smile, and I’m looking forward to seeing some beautiful smiley family photos soon! Congratulations Stephanie and Curt! Rest up and cherish those precious moments.

(Note – pictures sourced from Stephanie’s blog and Twitter.)

Edit: Just chatted to Steph and she’s said I can share a pic with you all! Isn’t William beautiful and Steph just radiant?!

 

This post is part of the Ichthyosis Awareness Month project. For all posts in this project, click here.

For Ichthyosis and appearance diversity resources, click here.