I am so excited they’re coming to the Australian Ichthyosis Meet in May! Maya will be there too – she’s so excited about the meet. Maya wrote a little message about her excitement – she’s a wonderful big sister. So cute! (Note – unlike all other guest posts published on this blog, I didn’t edit Maya’s for spelling and capital letters. I wanted to leave it pure, and I love that her imagination is captured through words.)

“My Name is Maya , i am 7.

when my Mum told me we were planning a trip to melbourne in May , and i was actually going this time . i was exicited, i like the aquarium in melbourne but my mum is not always able to take me when they go to the hospital, incase they get stuck there.

At first i was unsure what an Itchyosis conference was, i know what Itchyosis is my little sister has that , its apart of her.

So i had some questions to ask my mum and she let me read showed me some of Carly’s blog post online. Matilda my little sister met Carly when she was a baby. Carly is matilda’s friend.

then i understood , i will be able to meet other big sisters like me , who have little sisters or even big sisters or all grown up ones with Itchyosis. I hope there nice , i’ll try to be nice.

i hope they will be able to tell me about some of the inside games they play , matilda is a bit sick of our current inside games and i’m running out of idea’s.
i’ve never seen anyone that looks like my little sister , most of the time she just looks wrinkly and red like you’ve been in the bath too long , but sometimes shes really sick. Most of the time shes really funny. Smart and runs superfast and she eats all my crusts and vegetables when i dont want to eat them.

i could do with some more friends like that.

i am looking forward to comming to Melbourne in May from Tasmania , to meet new friends from Families like ours.”

If you would like to donate to the Australian Ichthyosis Meet, you can do so via Go Fund Me.