I’ve been following Cora’s blog for a while – I admire how she writes about coming to terms with her daughter Ashlynne’s Confetti Ichthyosis. Life has been hard for them but they’ve chosen to celebrate, to work as a team – to dance in the rain, as Cora writes. The connections Cora made has ensured Ashlynne gained confidence and is comfortable in her skin – such an important trait for a 12 year old girl. And she has a mature sense of perspective, reminding her peers of what’s important in life. I love their story.
“Born on January 14, 2003, Ashlynne made an impression on the world from the moment she came into it. Delivered in a small town hospital, the doctors immediately knew something was wrong with her skin, and it was something that was bigger than anything they could care for. So she took her first helicopter ride at just a few hours old, all by herself, leaving me, her mommy, all alone back in Abilene, KS with one word ringing through my head, a word that seemed totally foreign to me… Ichthyosis.
May is Ichthyosis Awareness Month – I am sharing stories of people who have experienced Ichthyosis. Read all stories in the Ichthyosis Awareness Month Blog Project here.