It’s Disability Day!
Something I’ve been trying to do more of is show more of my body publicly.
Not just because it’s hot (😘) but to shift away from medicalised photography, and to be more visible. You always see my face, but I cover up my body due to temperature regulation difficulty and pain.
I want people with ichthyosis and disabled people (and their families) to feel seen and less alone. I want to show them they don’t have to hide. I want doctors to see just what rare patients are doing, because sometimes it feels like we are worst case scenarios. But we are existing, living happy, prideful and thriving lives. I want to show that I’m not ashamed to be seen. I want to show that I experience disabled joy, and that I love my body.
I’ve been wearing Bonds for as long as I can remember. Most days I wear Bonds underwear or leggings. It’s so comfy. So I was thrilled when they sent me some of their colourful Comfy range – I loved this fun shoot with @pearly.sprinkles.
Disclaimer: @bondsaus sent me a selection of underwear and loungewear – I was not paid for this post.
Images: a series of Carly, a woman with Ichthyosis – scaly red skin, wearing underwear and loungewear, being joyous.