There's a funny irony in writing this. I started writing this in mid July. I called for quotes, did some research and expected to knock this out in an evening – writing from personal experience is always quick. Then I got so overwhelmed that I couldn't finish it. I could feel the … [Read more...]
This is what it feels like to be prayed for because of my disability. And it’s not ok.
On a recent Friday evening, I finished work with the excitement of a weekend full of reading and cooking. I headed down to my local bookstore on the tram before going home. While I was on the tram, a woman offered me a seat. I smiled and thanked her but shook my head. I was only … [Read more...]
My chat on the Fully Sick podcast
Late last year I met a wonderful woman called Jenny Joy, and she interviewed me for her Fully Sick podcast. The episode aired last month - apologies for not posting about it earlier. Jenny is such a great conversationalist. I really opened up in our chat - to the point that this … [Read more...]
This is what my disability looks like.
A bit over a week ago someone who has ichthyosis asked me why I classify myself as disabled, because they don't. They said to me: "I actually think that this may come across as offensive to some who are who unable to accomplish certain abilities that the average person has … [Read more...]
This is how it feels when you say “I don’t see your disability”.
When you say "I don’t see your disability", you think disability is below me.When you say "I don’t see your disability", you don’t think I’m disabled like "them".When you say "I don’t see your disability", you’re not comfortable with disability.When you say "I don’t see your … [Read more...]
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