This is my face up close. It's red, shiny and a bit lopsided because of a dodgy lymph node that flares up because of my inflammation. It's usually very smiley. Sometimes my hair is out of control, and sometimes there's a few bits of wayward skin hanging off my face and hair. This … [Read more...]
This is how two different types of Ichthyosis look, feel and are treated.
I got to hang out with Kyri just before I went overseas. We were in Sydney for an award ceremony . It was so much fun, and we realised how much we have in common. We could not stop talking. Kyri and I both have Ichthyosis - but different types. It seemed that our commonalities … [Read more...]
Seven books to help kids with Ichthyosis (and help kids learn about Ichthyosis).
Last week, a mum in one of the Ichthyosis groups I belong to asked about books to teach kids about Ichthyosis (and visible difference). The thread was soon filled with suggestions - and I asked if I could collate them and others I've found useful into one blog post. They … [Read more...]
The death of 11 year old Bethany – bullied because of her appearance
Content warning this post contains details of bullying and suicide. Crisis line details are at the bottom of this post. Bethany Thompson, an 11 year old girl from Ohio killed herself because bullies became too much for her. I read the news report and couldn't hold back … [Read more...]
Ichthyosis in developing countries: the stigma experienced in Africa.
In July I was alerted to some children in Wajir, Kenya who are suffering terribly from Ichthyosis. I rarely use the term 'suffering' but these children really are. My heart breaks for them.The children haven't received adequate medical treatment and are hidden from their … [Read more...]
- « Previous Page
- 1
- 2
- 3
- 4
- …
- 27
- Next Page »