On Wednesday night I had the pleasure of attending the Australian Centre for Leadership for Women Diversity Awards in Sydney. From the website:"ACLW’s Awards Program commenced in 2006, culminating so far in three national awards for women’s advancement, with more than 60 … [Read more...]
Ichthyosis in developing countries – India
Last week, an article was published about two young siblings in India living with Lamellar Ichthyosis. The article describes the children as having snake skin.Sayali (13) and Siddhant (11) Kapase live in Pune, India. The children, along with the parents, Sarika and Santosh … [Read more...]
Robyn Lambird and Madeline Stuart – Aussie models with disabilities rocking the fashion world.
It's an exciting week for disability-inclusive fashion - from chainstore to runway. Two young Australian women featuring in the Target catalogue and in New York Fashion Week. This week, Target features a young woman with a disability in its catalogue. Robyn Lambird, who … [Read more...]
Language really does matter when reporting about people living with Ichthyosis. Harper’s real story.
This article from Stock News USA came up in my google alerts yesterday morning. You can read the full text here. "Suffering from horrible harlequin Ichthyosis.""When she was born, she looked like an alien. It was very traumatic""Her bizarre condition."Those three excerpts is … [Read more...]
This is what my disability looks like.
A bit over a week ago someone who has ichthyosis asked me why I classify myself as disabled, because they don't. They said to me: "I actually think that this may come across as offensive to some who are who unable to accomplish certain abilities that the average person has … [Read more...]
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