I don't know about you, but sometimes I feel that a chronic illness can be a bit overlooked by people around me. I'm not saying they don't care, but it's either no surprise or a big surprise when I get sick(er), because the chronic illness is present all the time. It's not … [Read more...]
There are no wins in having it worse. Chronic illness and disability hierarchy.
This is sore, and this is sore. On the left, I'm dressed for work. I need to work - to pay rent, to be able to travel, eat out, buy clothes and save for the future. I also need to work to feel valued, to be involved, to contribute to society and to use and develop my skills. And … [Read more...]
Eight ways to use Instagram to build a strong chronic illness community.
I recently wrote about my love for Instagram - sharing advice from Jadah Sellner and showcasing my favourite accounts. I mentioned how much I love using Instagram to connect with others who have Ichthyosis.Instagram is an unlikely platform for forming a strong chronic illness … [Read more...]
Life hacks for managing chronic illness and disabilities.
I have to be innovative to manage Ichthyosis.My feet have been in excruciating pain. They went through their annual shed - the skin on the soles slowly came away. My brain worked and body moved but it hurt to walk. I'd been bathing them in saltwater and dressing them with … [Read more...]
#abledpeoplesay
(Street art - Hosier Lane, Melbourne) Yesterday morning on Twitter I came across the #abledpeoplesay meme. There were statements highlighting the ignorance around both physicial disabilities, invisible illness and depression. And I took part straight away, sharing the funny, … [Read more...]
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