Photo by Rick GuidottiAs Ichthyosis Awareness Month came to a close, I thought of the stories shared on my blog and across social media - people have been courageous for starting out. There are so many variations of the condition, and so many different experiences.Many people … [Read more...]
Ichthyosis Awareness Month – my story: “I’ve built a strong sense of resilience – both through having Ichthyosis and as an online writer.”
It’s the last day in May, and that means Ichthyosis Awareness Month comes to an end. 47 blog posts were published in May - and that’s been a great feat amongst full time work, organising the meet, participating in the Emerging Writers Festival, travel, university lecturing, … [Read more...]
Ichthyosis Awareness Month – Robin’s story: “If you look around you can meet wonderful people.”
Tonight is Robin's story - the last for Ichthyosis Awareness Month. Robin writes of life with Lamellar Ichthyosis. She has three children who are fiercely defensive of her, which makes her so proud. She also mentions the severity of Ichthyosis - last year she had an infection so … [Read more...]
Ichthyosis Awareness Month – Mary’s story: “The relief of finding other people with similar skin is very liberating.”
I met Mary around two years ago on my Facebook page. Mary has Ichthyosis Vulgaris. But at the time we chatted, I didn't know it. She was friendly, joined in on lots of discussions and offered compassion and the occasional empathy about skin pain. One day, when I was in … [Read more...]
Ichthyosis Awareness Month – Atique’s story: “If you to start your life over knowing what you know today, what would you change?”
Atique is 24 years old and from Pakistan and has lamellar ichthyosis. Atique's Ichthyosis has provided inspiration to study medicine - he writes about being a talented student. He hopes to research treatments for Ichthyosis.Meet Atique."If you to start your life over knowing what … [Read more...]
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