Today is World Psoriasis Day. I'm featuring a guest post by my gorgeous friend Hanah. She has psoriasis - an inflammatory skin condition - and she does so much to raise awareness of the condition. When I saw her promoting the cause on social media, I asked her if she could write … [Read more...]
New touch. Life after skin hunger.
I've been experiencing new touch. I realise I'm far from experiencing skin hunger now. I can't even remember what it's like to yearn for touch after doing so for years. It's like this frequent touch has erased all loneliness. He holds me so tight I might burst. My love is so … [Read more...]
My skin hunger has been satisfied.
I've written a lot about how my skin was hungry. Hungry for moisture, but also hungry for touch. For so long I yearned to be touched - dreaming of the times to come, remembering how long it had been since. Skin hunger is sensory deprivation, and it's proven to result in a failure … [Read more...]
On ‘normal’ and cures and pride.
Sometimes people compliment me when my skin looks paler than usual. It's as though I'm five shades closer to a white complexion. (Ichthyosis-less, my South African heritage would probably mean that I'd have pale brown skin.) What they're not seeing (or feeling) is the pain on … [Read more...]
When empathy hurts. Seeing skin conditions on screen
A friend sent me a link to a documentary called My Skin is Killing Me - it's about two people with severe skin conditions - a young American boy with Epidermolysis Bullosa, and a young Chinese man with Ichthyosis. It showed the medical and social pain of living with these … [Read more...]
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