Carly Findlay

Writer, speaker, appearance activist. Loving life!

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Appearance Diversity: World Psoriasis Day – Hanah’s story.

October 28, 2014 Carly Findlay Leave a Comment

Today is World Psoriasis Day. I'm featuring a guest post by my gorgeous friend Hanah. She has psoriasis - an inflammatory skin condition - and she does so much to raise awareness of the condition. When I saw her promoting the cause on social media, I asked her if she could write … [Read more...]

appearance activism, appearance diversity, psoriasis, skin, Uncategorized

New touch. Life after skin hunger.

July 6, 2014 Carly Findlay 14 Comments

I've been experiencing new touch. I realise I'm far from experiencing skin hunger now. I can't even remember what it's like to yearn for touch after doing so for years. It's like this frequent touch has erased all loneliness. He holds me so tight I might burst. My love is so … [Read more...]

skin, skin hunger, touch, travel, Uncategorized

My skin hunger has been satisfied.

March 2, 2014 Carly Findlay 14 Comments

I've written a lot about how my skin was hungry. Hungry for moisture, but also hungry for touch. For so long I yearned to be touched - dreaming of the times to come, remembering how long it had been since. Skin hunger is sensory deprivation, and it's proven to result in a failure … [Read more...]

ichthyosis, ichthyosis awareness, skin, skin hunger, Uncategorized

On ‘normal’ and cures and pride.

November 19, 2013 Carly Findlay 13 Comments

Sometimes people compliment me when my skin looks paler than usual. It's as though I'm five shades closer to a white complexion. (Ichthyosis-less, my South African heritage would probably mean that I'd have pale brown skin.) What they're not seeing (or feeling) is the pain on … [Read more...]

cure, disability, discrimination, normal, skin, skin colour, Uncategorized, visible difference

When empathy hurts. Seeing skin conditions on screen

October 29, 2013 Carly Findlay 8 Comments

A friend sent me a link to a documentary called My Skin is Killing Me - it's about two people with severe skin conditions - a young American boy with Epidermolysis Bullosa, and a young Chinese man with Ichthyosis. It showed the medical and social pain of living with these … [Read more...]

appearance activism, appearance diversity, documentary, Epidermolysis Bullosa, ichthyosis, ichthyosis awareness, media, skin, Uncategorized

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Archives

Popular Posts

  • Some thoughts ahead of Disability Day
  • Peppermint Magazine feature - Disabled Icons
  • What's with the image descriptions on my social media posts?
  • The death of Offspring's Dr Patrick Reid. The TV death that stopped a nation.
  • Face Equality is a Human Right
  • New covers for Growing Up Disabled in Australia
  • A note on jealousy
  • Book review: Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha
  • Me Before You - disability as a tragedy and the laughing able gaze.
  • The Greatest Showman - upliftspirational exploitation and the able gaze

Copyright

The material on Tune into Radio Carly is copyright. The writing in this blog is by Carly Findlay unless otherwise stated. Most photos in this blog are by Carly Findlay unless otherwise stated. Please do not reproduce without permission from Carly Findlay. This blog represents my personal opinions and experiences. It does not reflect those of my employers'. The information I provide about ichthyosis is mostly based on personal experiences. Please seek medical advice or counseling before trying any new treatments I've written about. Where stared, I use affiliate links on this blog. By clicking them, I receive a small percentage of the purchase.

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