It seems the more people I meet, and the more friends I make, the more I am reminded that people do treat me both normally and differently. Almost all of the new people who come into my life comment on how much they notice the staring. I never realised staring is that prominent … [Read more...]
Ichthyosis Awareness: Tina’s story – “The college discouraged me from being a doctor, stating that I being abnormal will not be able to do it. “
I promised to continue to share stories about personal journeys with Ichthyosis on my blog even though Ichthyosis Awareness Month is over. My blog is open to anyone affected by Ichthyosis to share their story - please contact me if you want to publish your story here. Today Tina … [Read more...]
Not well. Fandom.
I'm not well. Everything has collided and now I have sorer-than-usual skin. The pain is hard to describe - it's throbbing and tiring, and wears at my emotional armour. I'll be ok soon - I always am. This month has definitely shown that stressful situations (and even excitement) … [Read more...]
A trip to hospital in the ambulance. Pride of Australia nomination. Pretty treats.
What a strange fortnight - it's been a whirlwind of good and not so good events! I wanted a calmer week this past week, and for the most part it has been, except on Monday night when I had to go to hospital by ambulance because I had a reaction to my delicious seafood dinner. My … [Read more...]
Ichthyosis Awareness Month: My story.
"Writing about my illness is about getting everything out there so no one else can be uncomfortable about it." ~ Luke Ryan at the Emerging Writers Festival. The most hurtful thing about having Ichthyosis is seeing the way others react to it. If clumsy, horrible words aren't … [Read more...]
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