I asked my friend Lucy to write today's post. Lucy and I have been friends for about 15 years - we met through the Savage Garden Fanzine - we became penpals and have kept in touch by letter, then phone and online. We've met a few times in person too. For a little while, I noticed … [Read more...]
Experience relayed from patient to parent.
A couple of weeks ago I met baby Matilda and her mum Cheryle at the Royal Children's Hospital. Cheryle and I have become friends very recently - Matilda is a newborn baby with Ichthyosis. Cheryle has been reading my blog for a while, after a search for Ichthyosis support groups. … [Read more...]