Last week, a mum in one of the Ichthyosis groups I belong to asked about books to teach kids about Ichthyosis (and visible difference). The thread was soon filled with suggestions - and I asked if I could collate them and others I've found useful into one blog post. They … [Read more...]
Wonder by RJ Palacio. Choose kind.
When I was in NYC I spent an afternoon with Rick Guidotti By chance he had a parcel arrive, and inside was his copy of Wonder - returned from a friend who'd borrowed it. He passed it onto me. (source)Wonder is written by RJ Palacio and I've devoured it in a day. (There may be … [Read more...]
Ichthyosis is a big adjustment for a lover.
Since starting this relationship, I've had to see Ichthyosis, chronic illness and visible difference in layman's terms. From the perspective of someone who has been raised with good values and has a polite demeanour, yet never encountered such visible difference or chronic … [Read more...]
On ‘normal’ and cures and pride.
Sometimes people compliment me when my skin looks paler than usual. It's as though I'm five shades closer to a white complexion. (Ichthyosis-less, my South African heritage would probably mean that I'd have pale brown skin.) What they're not seeing (or feeling) is the pain on … [Read more...]
Appearance diversity: Andy Jackson – a body shaped like a question mark.
I've known Andy Jackson for around nine years now. I used to perform poetry in cafes and pubs in Melbourne and he was either organising the event or performing poetry, or both. He's an accomplished and celebrated poet - published in Australian and international publications, his … [Read more...]
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