CW: ableism, vanity, suicide “Can’t something be done for your face?” “Is there makeup to cover that?” “I have seen green makeup to cover redness - you can buy it at the makeup counter.” “I couldn’t go out of the house looking like that.” “You’re very … [Read more...]
The discrimination hangover
💔 I want to talk about the discrimination hangover. Because I am exhausted. On Sunday a taxi driver refused to take me because of my face. I lodged a complaint to the taxi company and taxi regulator. I wrote about it across three social media platforms early on Sunday night … [Read more...]
Ichthyosis Awareness Month
May is Ichthyosis Awareness Month. Here I am, for your awareness. I have Ichthyosis - the type I have is Netherton’s Syndrome. There are around 25 types of Ichthyosis, ranging in severity, appearance and treatments. Mine is one of the obvious, severe types (itchy, painful and … [Read more...]
A little bit of magic
Image: two people standing against a wall, smiling, hugging, looking at each other. On the left is Carly, and on the right is Eliza. The most magical thing happened this afternoon. I saw the beautiful Eliza Hull play at National Gallery of Victoria. So very talented. Eliza … [Read more...]
New covers for Growing Up Disabled in Australia
New cover release! By popular demand, I’ve worked with Black Inc to develop some alternative covers for Growing Up Disabled in Australia. These covers are aimed at the (mostly non disabled) people who just can’t bear to … [Read more...]