💜 It’s still Ichthyosis Awareness Month, and I’ve been writing posts to speak to the Ichthyosis community, rather than educate the wider community. I get lots of questions from people with Ichthyosis (and without) about how I am so confident. It’s been a journey. I know … [Read more...]

🖤💛 It’s #FaceEquality Week this week. Face Equality International has been posting lots of useful information for parents who want to talk to their kids about facial difference - including the preferred language to use. Go over to their Website, Facebook page and Instagram to … [Read more...]

CW: ableism, vanity, suicide “Can’t something be done for your face?” “Is there makeup to cover that?” “I have seen green makeup to cover redness - you can buy it at the makeup counter.” “I couldn’t go out of the house looking like that.” “You’re very … [Read more...]

💔 I want to talk about the discrimination hangover. Because I am exhausted. On Sunday a taxi driver refused to take me because of my face. I lodged a complaint to the taxi company and taxi regulator. I wrote about it across three social media platforms early on Sunday night … [Read more...]

May is Ichthyosis Awareness Month. Here I am, for your awareness. I have Ichthyosis - the type I have is Netherton’s Syndrome. There are around 25 types of Ichthyosis, ranging in severity, appearance and treatments. Mine is one of the obvious, severe types (itchy, painful and … [Read more...]