Carly Findlay

Writer, speaker, appearance activist. Loving life!

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Ichthyosis Awareness Month: my story. I am not a sufferer.

May 30, 2014 Carly Findlay 3 Comments

May. It was a busy month. Five countries, five plane trips, two longish train trips, lots of freelance writing, three writing classes taught, a bout of very sore skin, a lurgy that could only be cured with doses of brandy and dry ginger ale and 41 stories written by people … [Read more...]

appearance activism, appearance diversity, ichthyosis, ichthyosis awareness, ichthyosis awareness month 2014, Uncategorized

Ichthyosis Awareness Month: meeting Matthew, Aurora and Michael in Chicago. “We people who have a skin condition like this have to live a harder life then you other people do.”

May 29, 2014 Carly Findlay 1 Comment

I had dinner in Chicago with a family that has three children with Lamellar Ichthyosis. Denise and Mike - the parents of the children - had driven an hour one cold Sunday night to have dinner with me. We ate deep dish pizzas, talked and laughed and nodded in empathy.The children … [Read more...]

appearance activism, appearance diversity, diversity, ichthyosis, ichthyosis awareness, ichthyosis awareness month 2014, Uncategorized

Ichthyosis Awareness Month: Tania, Litia and Zadie’s story. “I know I’m a lucky mum.”

May 29, 2014 Carly Findlay Leave a Comment

Last year I had lunch with a wonderful family - Tania and Edwin, and their two little girls Litia and Zadie. Litia and Zadie were funny, artistic and really good conversationalists. They were cute and giggly. As I wrote last year, They guessed my age at 90 and 20, and then asking … [Read more...]

appearance activism, appearance diversity, diversity, ichthyosis, ichthyosis awareness, ichthyosis awareness month 2014, Uncategorized

Ichthyosis Awareness Month: Bailey’s story. “I began to believe that I am beautiful. I chose to accept my skin and began to love it.”

May 28, 2014 Carly Findlay 1 Comment

Bailey was one of the stars in last year's Ichthyosis Awareness Month Blog Project. This past year she's had success in beauty pageants - not only showcasing physical beauty but talent and intelligence too. She's got Lamellar Ichthyosis and a very positive outlook. She did a … [Read more...]

appearance activism, appearance diversity, diversity, ichthyosis, ichthyosis awareness, ichthyosis awareness month 2014, Uncategorized

Ichthyosis Awareness Month: Jayden and Jane’s story. “there are people in this world that are born a little bit different and that it’s ok,”

May 28, 2014 Carly Findlay Leave a Comment

Little Jayden has Harlequin Ichthyosis - his mum Jane writes of the challenges of giving birth to a baby with a very rare and severe skin condition. As she writes, Ichthyosis can affect so much of a baby's development - from feeding and weight gain to movement. She cites the … [Read more...]

appearance activism, appearance diversity, diversity, ichthyosis, ichthyosis awareness, ichthyosis awareness month 2014, Uncategorized

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Copyright

The material on Tune into Radio Carly is copyright. The writing in this blog is by Carly Findlay unless otherwise stated. Most photos in this blog are by Carly Findlay unless otherwise stated. Please do not reproduce without permission from Carly Findlay. This blog represents my personal opinions and experiences. It does not reflect those of my employers'. The information I provide about ichthyosis is mostly based on personal experiences. Please seek medical advice or counseling before trying any new treatments I've written about. Where stared, I use affiliate links on this blog. By clicking them, I receive a small percentage of the purchase.

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